View Full Version : Porphyria: A cause of chronic illnesses

12-25-10, 07:11 PM
Unfortunately I can't reprint this article, but I thought I'd alert you all to it in case anybody wants to buy it and read it - it's $1.50 and well worth it!!

Basically, Dr Steven Rochlitz is something of an expert on the condition known as porphyria, and in this article explains how it's likely that around 20% of the population have it, and its link - and likely cause of - many multi-system illnesses including MCS, fibromyalgia, CFS, Alzheimer's, autism, and others.

One of the best articles I've read on the subject ever; if you're interested I'd highly recommend it.

Otherwise, you can read it in this month's Nexus Magazine, which is where I read it. Great magazine. :D

Article link: http://tinyurl.com/278yafc

He's also got a book out about it, which I've just found a good review of and sums it up a bit better - looks like the extended version of the article. Thinking I may have to make a purchase later today...


12-25-10, 07:31 PM
My understanding of the link between multi system illnesses (MCS, CFS etc) and porphyria was that the multi system illnesses can trigger porphyrias in susceptible individuals. I have MCS but do not have any indication I might have porphyria and knowing there is a link I have been periodicaaly checking the symptoms. This post prompted me to do another check and looking through the list of symptoms on several sites, I am confident I do not have porphyria.
Here is a list of symptoms.

12-25-10, 07:59 PM
You should read it anyway - he's saying the standard list is often wrong, and many people with it don't display the 'typical' symptoms and are missed in diagnoses. For example, standard medical theory states that people with porphyria have stomach/abdo cramps and pain, and if you don't have that, you don't have it. Which isn't the case at all, and many people with it don't experience that at all. It's very interesting - I knew a little about it, but this piece made a lot of sense and blew a lot of the current ideology out of the water.

(Personally I'd go to a magazine shop or bookstore next time you're in town and just read it in the magazine without buying it... it's not too long, you could get away with it). ;)

12-26-10, 06:44 PM
Way back in the 80s I was diagnosed with porphyria but, the diagnosis was thrown out a few years later and no doc has ever been willing to consider it again. I had the black urine for a few days and some tests came back positive...that one time, but never again. Did not realize there might be a link between that and CFIDS etc.