PDA

View Full Version : New Case Criteria for ME/CFS



mellowsong
07-25-11, 04:00 PM
There's a lot of good stuff here. If you have or think you might have ME (hopefully US will officially change CFS to ME) you really need to look at this!
This is a compilation from a recent conference. This is on the MCS America website but there is no one author or date that I can find.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) is an acquired neurological disease with complex global dysfunctions represented by pathological dysregulation of the nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport. [32]

ME/CFS is primarily characterized by profound, debilitating fatigue. Other symptoms may include:[1, 32]
· Neurocognitive Impairments
· Pain
· Sleep Disturbance
· Neurosensory, Perceptual and Motor Disturbances
· Flu-Like Symptoms
· Susceptibility to Viral Infections
· Gastro-Intestinal Disturbances
· Genitourinary Disorders
· Sensitivities to Food, Medications, Odors or Chemicals
· Cardiovascular: Light-Headedness/Dizziness, Postural Orthostatic Tachycardia, Orthostatic Intolerance, Neurally Mediated Hypotension
· Respiratory Problems
· Loss Of Thermostatic Stability (Subnormal Body Temperature, Sweating Episodes, Cold Extremities)
Intolerance Of Extremes Of Temperature

The dramatic decline in activity level and stamina is often severe enough to result in substantial occupational, educational, and social limitations that lead to defining ME/CFS as a major functional impairment.[1] At least one quarter of those afflicted are either unemployed or on disability.[1]

Read more: http://mcs-america.org/index_files/CFS.htm

Reesacat
07-25-11, 04:30 PM
I checked to see if the ATP Profile Test was available in the US-not at this time as far as I know.
Dr. Myhill in the UK will accept blood for testing from overseas and gives instructions and pricing on her website:
http://www.drmyhill.co.uk/wiki/Mitochondrial_function_profile_for_overseas_CFS_su fferers_-_how_to_get_it_done