View Full Version : The Challenges of Living With Invisible Pain or Illness

09-28-11, 02:00 PM
by Toni Bernhard, J.D
September 28, 2011

In May of 2001, I got sick with what the doctors thought was an acute viral infection. But I didn't recover. As the months went by and I didn't get better, I felt as if I'd entered a parallel universe that I didn't know existed. One reason this universe is largely invisible is that many people living with chronic pain or illness don't look any different from those around them. We simply don't look sick or in pain.

I should qualify that. The people who are with us all the time know that we are suffering. They see those subtle differences in our demeanor when our symptoms intensify. These are our caregivers (called "carers" in many countries) and they inhabit this parallel world with us. At the end of this piece, I'll talk about the unique challenges they face.

Read more: http://www.psychologytoday.com/blog/turning-straw-gold/201109/the-challenges-living-invisible-pain-or-illness

09-28-11, 02:50 PM
Spot on! I will make an effort to go to Thanksgiving Dinner or something with friends and they see me upright and moving and want me to go to church or this or that and I have to explain all over again I am limited by damaged immune system and sensitivity to chemicals. I quit using the word fatigue and say "weak heart — do a little then rest" and that seems to help.