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Thread: Developmental disabilities inching up in U.S. kids

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    Administrator Islander's Avatar
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    Default Developmental disabilities inching up in U.S. kids

    By Frederik Joelving
    NEW YORK | Mon May 23, 2011

    (Reuters Health) - The number of U.S. children with developmental disabilities has been climbing over the past decade, reaching nearly one in six in 2006 to 2008, a new government report shows.

    "The take-home message for parents would be to promote early identification and screening of children," Sheree Boulet, of the Centers for Disease Control and Prevention in Atlanta, told Reuters Health. "These children require more services."

    The study, based on ongoing national surveys of children under 18, looked at a range of disabilities, including attention deficit hyperactivity disorder (ADHD), autism, blindness, cerebral palsy, hearing loss, seizures, stuttering or stammering and other developmental delays.

    http://www.reuters.com/article/2011/...e=ushealth1100

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    Veteran Member mellowsong's Avatar
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    Default Re: Developmental disabilities inching up in U.S. kids

    I'm really struggling to come to terms with things with my 5 y/o grandson. To make a long story short, my daughter was on massive doses of tramadol and Cymbalta while pregnant with him. He started having withdrawal seizures within hours of birth and spent 3 weeks in NICU. As they had no idea how to treat withdrawal from either drug, they gave him seizure meds and basically treated him the same way they treated cocaine babies. I know the drugs during pregnancy didn't help and I'm sure the misguided treatment in NICU made things worse but nobody knew even 5 years ago, that Cymbalta actually causes physical dependency and he should have been treated with gradually decreasing doses, not all the other crap they gave him.

    First of all, I HATE LABELS and think a lot of things are way overused. However he does have problems. We thought preschool might settle him down but if anything, it has made things worse. We've seen behavior problems and severe inattention since he was maybe 2. He even occasionally gets violent. Pulling him off gluten and some other things helped but not completely. I have felt he has hearing problems since infancy but docs would not listen to my daughter. On the other hand, he is the friendliest, most gregarious child you can imagine most of the time. He's been in preschool this year which has not gone well. After an incident where he kicked a teacher (again) she told Val and Jeff that she felt he needed evaluations by a behavior specialist and ENT. I knew this was coming but I freaked anyway because I was terrified the first thing was going to be ADHD and DRUGS. However, the way things are presently, he is not going to succeed in kindergarten next year. My daughter, knowing what the drugs did to me and to herself, is also adamantly against drugs and told the teacher that. God bless her, the teacher said she hates drugs and would never want to see Joey on them.

    ENT believes his adenoids are so huge that they are interfering with sleep causing some of the behavior. His "bad" behavior is not consistent and it is unpredictable. ENT thinks maybe some of it is related to how much/how good his sleep was on a given night. The behavior specialist believes he is definitely ADHD even if further ENT hearing tests confirm a hearing/sleep problem...however, she too is against drug treatment. She did tell my daughter though that he would probably need to go into special ed classes starting with kindergarten. She said special ed means more teachers per child but that he will be taught to his capabilities. Unless special ed has come a very long way in the last 15 years or so, I'm gravely concerned about this!

    Islander, this question is for you: He is an extremely intelligent child. Will he get what he needs in special ed? Will he get an education or will it be glorified day care?

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    Default Re: Developmental disabilities inching up in U.S. kids

    Quote Originally Posted by mellowsong View Post
    Islander, this question is for you: He is an extremely intelligent child. Will he get what he needs in special ed? Will he get an education or will it be glorified day care?
    My experience with special ed in several settings (but only within two school districts) has been very positive. I also took a summer grad course in spec ed methods and materials 6 years ago and found it hugely useful. If this is how teachers are being trained today, I'm impressed. However, I am aware that situations vary from one school to the next. If parent can visit classroom (parents are welcome to drop in here), that might be reassuring.

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    Veteran Member mellowsong's Avatar
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    Default Re: Developmental disabilities inching up in U.S. kids

    Thanks. SC is not known for education excellence, lol! I will say I have been extremely impressed with the pre school teacher and her patience and caring.

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    Veteran Member Reesacat's Avatar
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    Default Re: Developmental disabilities inching up in U.S. kids

    Would being in special ed program help your grandson qualify for extra help?

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    Default Re: Developmental disabilities inching up in U.S. kids

    I disagree that "The take-home message for parents would be to promote early identification and screening of children..." The take-home message ought first to be to avoid toxins as far as is humanly possible (and to my way of thinking, though I know not everyone will agree with me, that includes vaccines), from before pregnancy onwards.

    The early ID and screening thing is a very sharp double-edged sword, and sharper on one side than on the other, IMO. Many would use them for drugging purposes, maybe taking legal steps if the parents did not do so, as has already happened. It reminds me of the whole war on cancer thing: Why not concentrate on aiming to prevent these scourges with a healthy lifestyle? The "ID and screening" approach skips that step and goes straight to 'treatment', which all too often includes dangerous mind-altering drugs.

    I'm not in any way saying that all of these difficulties can or will be avoided by preventive measures, but I'll bet a lot of them could be.

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    Default Re: Developmental disabilities inching up in U.S. kids

    Mellow, so sorry about your grandson. Thank God he's got some doctors and a teacher who don't just reach for the drugs. Is there any possible way he could be home-schooled?

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    Veteran Member Reesacat's Avatar
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    Default Re: Developmental disabilities inching up in U.S. kids

    Well said about avoiding vaccines and toxins before and during pregnancy, Pattypans!

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    Veteran Member mellowsong's Avatar
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    Default Re: Developmental disabilities inching up in U.S. kids

    Quote Originally Posted by Pattypans View Post
    Mellow, so sorry about your grandson. Thank God he's got some doctors and a teacher who don't just reach for the drugs. Is there any possible way he could be home-schooled?
    Reesacat, he would qualify for school help and the behavior therapist etc which is already covered by Medicaid. Not sure if anything else. They are just starting this journey. Pattypans, my daughter was on these drugs because she has terrible fibromyalgia, CFIDS and other problems. She is also autistic. She has been considering home schooling but she's not sure that she'd be able. Also, Joey probably acts worse with her than anyone else. Other than pushing for hearing evals, I've been afraid to get my daughter to ask for anything else because I was so afraid they'd immediately want to drug him. I am so relieved that so far, nobody sees that as the answer.

    Obviously, while she was pregnant with both the kids, we didn't know anything but conventional drivel. Hindsight might be 20-20 but we can't change what happened then. She got off the Cymbalta over a year ago and recently managed to get off the tramadol too. Going gluten free has helped her a lot but she still struggles. I totally agree that prevention as in no or fewer vaccinations, avoiding drugs, toxins etc would dramatically decrease a lot of these problems.

    One other thing I forgot to mention and for the last few years I've wondered if this contributed to his problems: When he was a year old, Val brought him in for shots. They did not have his records from FL at the time and the doc told the nurse to give him ALL his shots at once...everything from 3 months to a year at one time. My daughter didn't know until afterwards what they had done and I wasn't with her. Even being conventional then, I would have freaked out. I think she said he got 20 different vaccines in 4 or 5 shots, something like that.

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    Veteran Member bmc65's Avatar
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    Default Re: Developmental disabilities inching up in U.S. kids

    Mellow I feel for you. My son just finished up with his neuro psych testing today. I'll get the results in June. So far with an IEP in a public shcool taleneted and gifted program, he has not been getting what he needs and it is not working out. Anyway, I totally agree with Pattypans on finding the cause, and avoiding toxins (which I have done mostly. We stopped vaccinating when the MMR was due).

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